Saturday, April 30, 2011

Andre: MTX 2 + 3

Wednesday 4/20- Friday 4/22 Radhika had her second round of MTX. It went MUCH better than the first round: she got patches for nausea and pain, and a lot of IV nausea meds, and lo and behold nausea was not nearly as much of a problem. Just once we weren't careful and the bicarbonate came back up since she had it too close to drinking water, but otherwise she was not that even all that nauseous.

Wednesday we got to Cedars at 10AM, and after various tests, IV premeds, an appointment with the gastro-enterologist and of course the 4 hour course of MTX we left Cedars at 11PM after a last round of benedryl & reglan. The night was uneventful. With interruptions Radhika slept from 1PM Wednesday to 10 AM Thursday. She hadn't slept well for 2 days in anticipation, so when she was finally at Cedars she just crashed. On Thursday we went to Cedars for less than an hour for a blood test, but other than that we staid in the apartment. We went back for another blood test and consultations with Susan and Forscher on Friday, and then we were allowed to go back home.

Other than the adjustment in meds and the fact that they slightly lowered her dose of MTX, the apartment is making a huge difference to our experience. It is truly BEAUTIFUL, and it already feels like home away from home. It is 8-10 minutes from Cedars (traffic is no problem) and it is so peaceful and quiet, surrounded by trees, in a safe neighborhood, and lovingly furnished and equipped by Leticia, Marie and Vivienne ... thanks to all of you, this really helps with Radhika's sense of well-being. The first two rounds were scary and the hospital seemed like the safest place to be; now it feels like the apartment is the place we want to get to as fast as we can from the hospital every time we are here ... which is the way it ought to be!

With Forscher and Susan being on vacation the week of April 24-29, the third round of MTX was scheduled for today (April 30) and in fact that is where I am writing from: Room 2 (our room these last couple of times) in the Osher cancer center at Cedars. And so far so good, Radhika just finished the MTX (mostly sleeping, even though we did watch the end of the movie "Secretariat" which we had started 2 weeks ago, not a bad movie), and then in half an hour we will head out from here. I will let you all know early next week how it all went.

We made good use of the week off. After Latha left Sunday morning, Radhika's best friend from high school Kali (who now lives near Atlanta) took care of her for 6 days. Kali really helped Radhika by tailoring a diet specifically to her cancer situation and more importantly she was there to faithfully administer it as well. Radhika has so many amazing friends and you all keep her spirits up with every message of encouragement. Radhika's pain has drastically lessened (she just has to change the Fentanyl patch every 3 days and the oral Dilaudid is basically not needed anymore), and the fatigue has also gone down in no small part due to Kali's loving care. Radhikas attitude is also mostly positive these days, the Lexapro definitely helps with that. Finally, thanks to the CORAM home nursing service which takes care of her blood work in the off weeks, she has her own hydration pump (prescribed by Forscher, administered by yours truly), which we have now taken with us to the apartment: this cuts the amount of water she needs to actually drink down to less than half so that hopefully THIS time the bicarb won't be a problem at all.

Looking forward, we will meet Susan on Monday to discuss the further plan of action, but right now it looks like Radhika will get Adriamycin on Monday May 9th, and after that she will get 1-2 weeks off before the next round ... by that time my finals should be graded, summer break here I come!

Alright, we will be heading back to the apartment real soon here and I have to wrap things up now. Be well!

13 comments:

  1. Thank you for keeping us posted. You all are in our prayers. R.

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  2. Andre,
    Thank you for the updates – You and Radhika have been in my thoughts. Send you good thoughts, prayers, and hugs your way. Love, Sonia

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  3. Radhika, I was absolutely thrilled to see you (unexpectedly) the other day! So glad we had a few moments to sit and talk, and I hope we didn't wear you out! Itdid my heart so much good to see your smile.... :)

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  4. Thank you for the update. I'm glad to hear that Radhika's pain and nausea are under better control. Good luck with this next round, Kim

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  6. Last month, I started writing a song for you, my dear Radhika-- a song inspired by your comment about how good it felt to be back in the San Diego sun following your trip to Minnesota. I sent my badly arranged version to my producer friend in Sweden (Tomas Barkman), and with his incredibly skilled hand, he created something beautiful and worthy of you. Tomas sends his love and best wishes... He feels he knows you through the lyrics, and I can only hope that anyone else will also understand how lucky we all are to be among those that call you friend. We call it "Radiant". With all my love... http://www.perfectbounce.se/ba4.mp3

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  7. WOW -- Julianna, this is so beautiful! I believe it's the anthem for Radhika's recovery. It's really gorgeous and captures so much of what we are all trying to transmit through our posts.

    Andres -- your posts are eloquent and speak volumes. Thank you for the effort it takes to create them.

    Radhika, I am glad the apartment is your safe haven. What a relief it is to all of us to know you do have a haven when in L.A. Sending you reams of strength and good wishes.
    Love, Vivienne

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  8. I second Viv's comment, Julianna; the song is beautiful and captures Radhika's spirit perfectly.

    Andre, thanks for your update. I'm so glad the apartment has worked out. You know it is filled with our love!

    Radhika, I hope to see you soon.

    Love,
    Marie

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  9. Andre, what a great post. I've been "off line" for a week and it was so wonderful to get home to the positive words you shared. And the song that Julianna wrote is amazing! Radhika, as I listed to the song I could see your big smile and feel your positive energy. We continue to pray for you, Andre, Mira and all of your doctors and caretakers. Leticia and Kent

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  10. Hi everyone- I just saw the request to donate vacation and sick leave hours to Radhika. Please download the form and donate!!!!!!

    Bianca

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  11. I agree with everyone, Julianna your song is beautiful. Thank you for sharing it with everyone!

    Radhika, I'm thinking about you and miss you. Sonia was thrilled when you called last Friday. It made our day! I hope to hear your voice soon!

    xoxoxoxo Keep your spirits up!

    With Love,
    Teresa

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  12. To quote today's campus-wide announcements: "Due to the overwhelming generosity of the campus community, Radhika Ramamurthi has received the necessary catastrophic leave donations for the 2011 Spring Semester."

    Because I'm a nut, I've kept every campus announcement since I've been here. I did a search, and this is the first time "overwhelming generosity" has ever shown up in an announcement.

    We love you, Radhika!

    Stephen

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  13. Stephen beat me to it. In 17 years here, I have never seen an announcement like that regarding catastrophic leave donations. I think I know more people who got turned away -- me included -- than were able to donate. So, Radhika, if you need a sudden boost right now, here it is -- the people who love you, care about you, and support you are so numerous that Payroll had to stop people from continuing to send in donations of leave time! Think of how many people on campus are rooting for you and jumped at the chance to help out. You are something special, girl.
    Vivienne

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